Incessant gibberish, to clear well intended insight, to complete hilarity and nonstop laughter- interactions with Nana can be hysterical. I often wonder what outsiders think- if they aren't astute to what I'm dealing with, I'm certain we both look insane. I often feel like Alz is contagious. When Nana starts making no sense, my responses are in line with hers... I look forward to when Bill and Troy are home, at least then I can form and hear a complete, logical sentence and have a whole conversation that isn't completely forgotten moments into the first words.
In the coming months, I’ll share some videos of our conversations and interactions because sometimes those are best understood by witnessing vs. me trying to explain. I share the videos not to shame or embarrass (frankly, she doesn’t know what shame is anymore), but to give you an inside peek at what we are experiencing.
If you follow us on Instagram (@mynanaskpr) or Facebook, you often see me re-frame the shit into something that amuses me. That’s part of how I deal with my experience as a caregiver, and as her granddaughter. It’s not always fun. She is not the Nana I grew up around. She is living in a world that no longer makes any logical sense. And I don’t understand it either. I don’t know the whys or hows, but try to make sense in my own way. And that’s often through humor.
She needs extra attention and immediate satisfaction or risks being confused or entirely unaware every other moment. Sometimes good distractions work, and other times I have to keep trying. And then there are the moments when I just go with it. Sometimes that’s an ok solution too. No matter what I do, I’m not going to change the fact that she has Alzheimer’s. But I still try to make her experiences comfortable and happy, even if that means I momentarily feed into the nonsense.
Keep an eye out for video posts :)